My inescapable journey

Sorry I’ve been a bit quiet.  Life just ‘gets in the way’ I wish I had something exiting to say that I’ve been doing. But it’s just been work work work!  Few updates: I was recommended some different cream to try which is hemp cream from the body shop. Absolutely amazing stuff at keeping my bad hands moisturised and not too oily!  - the weird rashes I have that appeared on my hands have started to spread on my arms now. On my hand and by my elbow. I haven’t had it appear anywhere else and I have been checking! - the toe infection I had on my right toe, still present. Thankfully not as swollen as it was last time but still so uncomfortable. I also have now got it on my left toe! Again, toenail split, boom infection. More penicillin for that, and regular bathing my toe in salt water! e nurse also recommended using tea tree oil on the nail which I have been doing before bed!  -  On the plus side - I got discharged from the heart failure clin...

I haven’t written in a while, just been trying to keep my head above water and powering on. I am struggling lately. More so with my symptoms then my mental health, which I thought my mental health would be harsher. But I have only just really begun this journey. My hands are still extremely sore. Every week I go for more chemo, they just say use this cream, use that cream, but no cream seems to be working. I am due to see the oncologist on Monday 20th, before my next cycle starts and I’ll ask again then! But I’ve tried lots of different types, but nothing seems to be making them calmer and less sore! Updated hand photo! definitely spread on the left hand!   I’ve been blessed with another UTI, which can only be explained as a friggin nightmare. So I have been given more antibiotics for that. I’ve only just finished taking antibiotics from Christmas for a UTI! Also may I add, I have no ‘reason’ why I have one. The GP was like - “any new bath products?” ...

Now it’s starting to become a chore. Weekly visits to the hospital, bloods in morning, then return for afternoon session of chemo. They run behind and then it gets boring being there. My week has been okay. Mixed emotions and symptoms.  31/12/19 Today I had the dreaded double dose of chemotherapy! I had the Carboplatin and the Paclitaxol! As part of my conversation with my oncologist on the 30th, they have reduced the dosage of the Paclitaxol because of the neuropathy in my fingers.  The problem with doubles, is that they are long days! 1/2hour or so for pre meds, which are all put in my PICC line, then a flush for 10mins, then chemo bag number 1, then a flush for 10/15mins, then another chemo bag and then a final flush and disconnect. Then your given your medication to take home for the next 3 weeks! the medication normally consists of anti-sickness tablets (On double weeks I have worse anti sickness so they give me a different type called Ondansetron because my sickne...